Palliative Care Includes Which Of The Following Key Features – The development of the Palliative Care Framework would not have been possible without the participation and direction of key organisations, groups and individuals, including provinces and territories (P/Ts) and other federal government agencies. The Hospice Unit at Health wants to recognize the contributions of many stakeholders, including people with life-limiting illnesses and their family members, health care providers, caregivers, researchers, and others living in the . Their input and the deeply personal stories they share with us online, in print, and in person have helped shape the Framework. Contributors and stakeholders shared a variety of perspectives and provided insight into potential issues. For these views, we are very grateful. The following document reflects these opinions and views.
Ultimately, this Framework would not have been possible without the close cooperation between contributors and the Hospice. The Palliative Care Framework is the result of shared values and perspectives. Appendix A contains a list of key groups and individuals who contributed to the development of this document.
Palliative Care Includes Which Of The Following Key Features
Many Canadians find it difficult to discuss death, dying, and hospice with loved ones and their health care providers. We tend to avoid these conversations out of fear and pain. However, these issues are important to the health of the dying person and their families. Encouraging Canadians to honestly and fully discuss death and planning for the end of life can reduce stress and anxiety and help ensure that Canadians get the death they want. .
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Over time, our experience of death and dying has evolved with changing causes of death, care and support, and cultural and social practices. Palliative care has also evolved into a practice aimed at reducing pain and improving the quality of life and death of Canadians and their families. However, we know we need to do more to improve human-centred care and equitable access so that every Canadian has the best possible quality of life at the end of life. .
During the summer of 2018, Health officials heard many stories of dedication and commitment from terminally ill people, caregivers, volunteers, and healthcare providers. . However, there have been stories that point to significant gaps in awareness, understanding and access to palliative care around the world.
The message from these conversations is clear: the wants and needs of dying Canadians should be at the heart of our care practices. It is important that their cultural values and personal preferences are expressed, understood and respected when discussing care plans and treatment options. This message has inspired and influenced the Palliative Care Framework in .
Together, we can achieve so much by leading by example of compassion, learning from each other, and working as a team. We will all need a concerted effort to continue to advance palliative care for Canadians. I invite all stakeholders to participate in the implementation of the findings of this Framework.
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At the end of 2017, the Act providing the development of a palliative care framework was passed by Congress with the support of all parties. During the spring and summer of 2018, Health consulted with provincial and territorial governments, other federal agencies, and national stakeholders, as well as those with critical illnesses. , carers and Canadians. The findings from this consultation, as well as the requirements outlined in the Act, provided the basis for the Palliative Care Framework in .
In Part I, the Framework provides an overview of palliative care, giving the definition of the World Health Organization in the Canadian context. The framework describes how palliative care is provided and the roles and responsibilities of the many people and organizations involved. It sets out the purpose of the Framework to provide a structure and impetus for collective action to address gaps in access to and quality of palliative care. It also provides a brief description of the consultation process.
Part II, the heart of the Framework, lays out a shared vision for palliative care: that all Canadians with a terminal illness live well into the rest of their lives. Key to this vision is a set of Guiding Principles, developed in collaboration with the participants in the consultation process. These principles reflect the Canadian context and are considered fundamental to providing high quality palliative care in .
Recognizing the dynamics of palliative care and its wide range of participants, this module provides a Blueprint to help shape planning, decision-making, and organizational change in the current landscape. It identifies current efforts and best practices, and sets goals and a set of priorities for short-, medium- and long-term action to improve each of the four priority areas. first:
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In this section, the Framework also outlines how we can recognize success when it comes to common progress.
In summary, Section III describes implementation and next steps, suggesting a single focal point for improving palliative care status. It concludes with the recognition that advancing the Framework will require collective action by parties at all levels, as well as flexibility to develop and respond to new ideas and emerging needs as time.
PART I – What is a Palliative Care Facility? Death and Dying Of the more than 270,000 Canadians who die each year, 90% die from chronic diseases, such as cancer, heart disease, organ failure, dementia or illness. By 2026, the number of deaths is expected to increase to 330,000 and to 425,000 by 2036. Despite Canadians’ desire to die at home, 60% of people die in hospitals. Statistics
The term “palliative care” emerged in the mid-1970s, initially as a medical specialty that primarily served cancer patients in hospitals. Since then, however, the scope of palliative care has been expanded to include all people with serious illnesses. With an aging population, the need for palliative care provided by multiple providers has increased. Palliative care is an approach that reduces pain and improves quality of life for people with life-limiting conditions by providing:
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In the center. This refers to a method of care that puts the person being cared for and their family at the center of decision making. It puts their values and desires first in treatment matters. In person- and family-centered care, the voices of people with serious illnesses and their families are sought and respected.
Palliative care can be provided with other treatment plans and is provided in a variety of settings by many health care providers, including but not limited to: doctors, nurse practitioner, nurse practitioner, pharmacist, social worker, occupational therapist, speech therapist, and mental health counselor.
For the purposes of this Framework, the Department of Health has adopted the World Health Organization (WHO) definition of palliative care.
Recognizing that the WHO definition is for a global audience, the Government of , after consultation with a wide range of stakeholders, has developed a set of Guidelines. These principles are outlined in Part II of the Framework and allow the definition of palliative care to be adapted to the Canadian context.
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Palliative care is an approach that improves the quality of life of individuals and their families dealing with problems associated with life-limiting diseases, through the prevention and relief of pain through early recognition and effective assessment and treatment of pain and other problems, physical, psychosocial, and spiritual. Palliative care:
Identified continuing gaps in access to and quality of palliative care across . For example, a 2018 report from the Canadian Institute of Health Information (CIHI) notes that:
Changing demographics and increasing impact/pressure on carers: With the trend of families being smaller and family members living further apart, the burden of care falls on fewer members families, salaried employees and more community. Although family and friends provide much of the care for the elderly or sick, such care can create physical, emotional, and financial stress. One in three caregivers reports anxiety and exhaustion.
Changing expectations for person-centred care: More and more Canadians want to take a more active role in making decisions about their care, including choices. treatment and care arrangements.
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Gap in specialized training: Few health care providers specialize or practice primarily in the palliative care field. Canadian doctors and nurses report varying degrees of training and comfort in providing palliative care
. To build broader capacity, there is growing expectation for all healthcare providers to know how to deliver basic palliative care services. This leads to increased pressure to develop curricula and methods of education and training aimed at those whose primary activity is not palliative care.
Increasing public debate about decisions and hospice: On June 17, 2016, the government passed legislation allowing dying medical assistance for eligible Canadians
. The public debate surrounding this issue has focused significantly on the importance of Canadians having access to a wide range of hospice options, including palliative care. Medicine
Pdf] Emotional Labour In Palliative And End Of Life Care Communication: A Qualitative Study With Generalist Palliative Care Providers.
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